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Public Policy & Advocacy

Growing Up With HIV

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Working with policymakers globally to advocate for women, children and families affected by HIV/AIDS

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Ending AIDS in Children Possible by 2020 if World Commits to Bold Targets

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Tool Kit on Pediatric HIV Treatment in Partnership with African First Ladies Against HIV/AIDS

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Eliminating Mother-to-Child Transmission

EGPAF works with policymakers around the world advocating for the best public policies for women, children, and families affected by HIV/AIDS

Start Free, Stay Free, AIDS Free

Start Free, Stay Free, AIDS Free is  a unified framework to end vertical HIV transmission, cut new infections among adolescents and young women, and increase and sustain access to antiretroviral treatment (ART) by children and adolescents. EGPAF is supporting efforts to reach the ambitious targets associated with the framework including ending new infections in children.

 

Pediatric HIV Treatment

Ensuring HIV positive children have access to lifesaving treatment

90-90-90 for Children

The UNAIDS "90-90-90" targets aim for 90% of all children living with HIV to be diagnosed, 90% of those diagnosed HIV-positive receiving treatment, and 90% of those children receiving treatment achieving viral suppression by 2020. Our briefing document illustrates what is needed to reach the UNAIDS Fast Track Targets for children. A new “Super Fast-Track” target of putting 95% of children on treatment by 2018 means these steps are even more vital.

IPU-EGPAF Paper on Pediatric HIV Treatment

EGPAF partnered with the Inter-Parliamentary Union on a paper addressing the challenges of pediatric HIV treatment and highlighting what parliamentarians can do to help further the agenda in their country.

Accelerating Children's HIV/AIDS Treatment (ACT)

ACT is a two year initiative funded by the President’s Emergency Plan for AIDS Relief (PEPFAR) and the Children’s Investment Fund Foundation (CIFF) with the purpose of doubling the number of children receiving life-saving antiretroviral therapy (ART) in nine priority countries over two years. EGPAF has called for an increased focus on children within PEPFAR, and welcomes the U.S. government’s political leadership on this issue.

Gap Analysis on Pediatric HIV Treatment

As a result of collaborative advocacy efforts between EGPAF and other non-governmental organizations, UNAIDS produced a gap analysis on pediatric HIV treatment in December 2014, leading to a set of decisions by the UNAIDS Programme Coordinating Board on making better progress on pediatric treatment. EGPAF is working closely with UNAIDS to take forward these decisions and increase access to treatment for children living with HIV including by ensuring the UNAIDS Strategy 2016-2021 included strong and comprehensive language on addressing the pediatric treatment gap.

Innovation Needed on Pediatric ARV Formulations

Our briefing document highlights the numerous problems with currently available ARV formulations for children, which can be unpalatable, difficult to swallow, and hard to administer, and identifies areas where additional research and innovation is needed.

Pediatric HIV Treatment Must Be A Global Priority

This document discusses why action must be taken at all levels to expand pediatric services in facilities and commuities and to initiate and retain children in these vital programs. 

Global & Regional Initiatives

Advocating at the global and regional level to improve access to, and uptake of, HIV care and treatment services

United Nations Human Rights Mechanisms

EGPAF engages with United Nations human rights treaty bodies, including the Committee on the Rights of the Child, the Committee on Economic, Social and Cultural Rights, the Committee on the Elimination of Discrimination Against Women, and the Human Rights Council, to highlight the connection between progress on pediatric HIV and further respect for human rights under international law.

African Human Rights Mechanisms

EGPAF contributed to paper on the status of pediatric HIV on the African continent to a publication for the celebration of the 25th year of the African Charter on the Rights and the Welfare of the Child. EGPAF is now focusing its engagement with the African Committee of Experts on the Rights and Welfare of the Child on providing information to the committee on the status of children infected and affected by HIV to inform its policymaking.

Advocacy Tool Kit for African First Ladies

In partnership with the Organization of African First Ladies Against HIV/AIDS (OAFLA), EGPAF developed a tool kit on pediatric HIV treatment to guide African First Ladies in their advocacy efforts in country and within the region. The tool kit touches on key areas important to addressing pediatric HIV treatment, including: PMTCT, early infant diagnosis (EID) and linkage to care, pediatric formulations, and stigma and discrimination. This tool kit will facilitate the achievement of the goals that OAFLA has developed in its strategic plan of 2014-2018. (French, Portuguese)

United Nations High Level Meeting on HIV/AIDS

From June 8-10, 2016, The United Nations held a High Level Meeting (HLM) on HIV and AIDS where UN Member States adopted a political declaration on the global HIV epidemic that includes ambitious pediatric treatment and EMTCT targets and other political commitments in support of ending AIDS in children. Leading up to this meeting EPGAF advocated for the inclusion of such strong language and targets by being a panelist in an Informal Civil Society Hearing at the UN in New York in April 2016, and a Panel on Children, Adolescents, and Young Women at the HLM, as well as through extensive engagement with governments. EGPAF made a statement at the recent UNAIDS Programme Coordinating Board Meeting in Geneva highlighting the important outcomes on children and adolescents from the High Level Meeting and the need to take action on these commitments.

AIDS Watch Africa (AWA)

The African Union created AIDS Watch Africa as a political advocacy platform to more directly engage African Heads of States in TB, HIV and malaria on the continent. As a member of the AWA Consultative Experts Committee, EGPAF is involved in generating documentation for consideration by the AWA Heads of State and Government, conducting advocacy and networking with partners in and outside Africa, and following up on implementation of the recommendations of the AWA Action Committee.

Funding the AIDS Response

Robust funding is critical to support domestic and global HIV/AIDS programs and research

African Union Catalytic Framework

The objective of the Catalytic Framework is to intensify  implementation of financial targets set out in the Abuja +12 commitments on HIV, TB and Malaria by building Africa-wide consensus on key strategic actions. EGPAF served as the non-governmental focal point for the technical consultations in Lusaka, Zambia, in November 2015, and continues to be a prominent participant in ongoing technical consultations on the framework and its implementation.

President's Emergency Plan for AIDS Relief

The U.S. is the single largest funder of HIV/AIDS activities around the world. EGPAF advocates on Capitol Hill and to the Administration for a strong bi-lateral global HIV/AIDS response through PEPFAR, USAID and CDC, as well as multilateral commitments through the Global Fund to Fight AIDS, Tuberculosis and Malaria.

U.S. & HIV

Pediatric HIV and related issues should remain a priority for the domestic HIV response

Domestic Epidemic

New HIV infections in children in the United States have dramatically declined since the beginning of the epidemic—infections in children peaked in 1992 when there were approximately 2,000 new pediatric HIV cases per year. Today there are only about 100-200 new infections in children each year. EGPAF advocates to ensure that new infections in children remain low and that pregnant women and children infected with HIV have access to the critical services and medicines they need to survive and thrive. 

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NIH Research

Since its inception, EGPAF has advocated for children to be included in and benefit from scientific advances in HIV treatment and prevention. The National Institute of Health (NIH) is the worldwide leader in HIV research and its work to combat pediatric HIV and AIDS is crucial to ensuring that children impacted by the disease survive and thrive. EGPAF regularly engages with NIH to keep pediatric AIDS research a priority and pushes Congress to sufficiently fund promising HIV research.

Ryan White HIV/AIDS Program

The Ryan White HIV/AIDS Program provides critical services to women and children impacted by HIV in the United States, particularly for the approximately 8,500 HIV positive pregnant women each year who need tailored care to ensure HIV is not transmitted to their children. This is why the Foundation continues to advocate for Ryan White programs as a critical part of the U.S. HIV service continuum, particularly supporting Ryan White Part D which addresses the medical and non-medical needs of women, infants, children, youth and families living with and impacted by HIV and AIDS.

Pediatric Drug and Device Development

Children are not just small adults, and children being treated for HIV, or any disease, should have drugs that are labeled and formulated specifically for them.  EGPAF works with Congress and the Food and Drug Administration (FDA) on pediatric drug laws and programs to ensure that new medicines, vaccines and devices take into account the unique needs of children.

Maternal & Child Health

Advocating for strong policies and programs addressing maternal and child health

Every Woman Every Child Commitment

The Every Woman Every Child movement was launched in 2010 to build support for the United Nation’s Secretary General’s Global Strategy for Women’s and Children’s Health and has since redoubled its efforts in support of the updated Global Strategy on Women’s, Children’s, and Adolescent’s Health that was launched in September of 2015.  In addition to helping mobilize and intensify global action around maternal and child health, the Foundation is directly contributing to the objectives of EWEC through its commitment to work with governments to improve access to life-long ART through maternal, newborn, and child health (MNCH) services over the next several years.

CARMMA + Maputo Plan of Action

The Campaign on Accelerated Reduction of Maternal Mortality in Africa (CARMMA) was initiated by the African Union Commission to address the challenges of maternal mortality in African countries and launched in 2009. EGPAF supports this initiative through its strong collaboration with the African Union and advocating for evidence-based innovations and best practices to reduce maternal mortality.

Children Matter in the Fight Against HIV

This document presents key facts about the impact HIV/AIDS has on children and outlines the important steps of preventing mother-to-child transmission of HIV.

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