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A Mother's Story

Posted by Suzan Meredith
Louisville, Kentucky
September 9, 2010


Hi, my name is Suzan. I am a mom who is passionate about life and family. Twenty-three years ago I married Clay, the man of my dreams, and together we are raising three amazing children, two biological and a son we adopted from Ethiopia. Our daughter, Alee, is a sophomore in college this year; our 14-year-old, Mitchell, is an honors student into music and a member of his school’s marching band; and then there is our youngest, Yonas, our spirited little guy who has added a lot of laughter and happiness to the mix. Life is good. Really good. But it wasn’t always that way for our family.  

Suzan Meredith and her husband, Clay, and children
Alee, Yonas, and Mitchell. 
In 1996, my children were dying of AIDS. Diagnosed just eight months after the birth of my second child, almost overnight my children and I became just another face of AIDS. I unknowingly contracted the virus from my high school sweetheart (who I had believed died of cancer) and carried the HIV virus for nearly 10 years without ever knowing it. We were very lucky - my husband never did contract HIV, but unfortunately both of our children did. I nearly lost Alee and Mitchell that year, but 1996 – the year we were diagnosed – was also the same year that protease inhibitors became available, which is a type of antiretroviral drug used to treat HIV. My husband and I would crush the blue pills into pudding, clap and cheer, and somehow our children would manage to swallow the brown, sticky mess. Daily, we saw improvements. This new medicine, in combination with two others, brought our children back to us. It was and still is the most miraculous thing that I have ever witnessed.

So yes, we are very fortunate, but that is not often the case in other parts of the world like Africa, where Yonas was born. There mothers often feel helpless to stop the spread of the virus to their own children. Being a mother with three children who are all positive, yet remarkably healthy, I can only imagine what that feels like.

The hardest part of living with HIV was never that I might die, but rather that I gave this terrible disease to my children. No mother should have to carry that burden. Not today, not ever. Especially when mother-to-child transmission of HIV is completely preventable. Inexpensive and effective medicines can reduce the chances of a mother passing the virus on to her children to less than two percent. Those are some pretty terrific odds.

Mother-to-child transmission has been virtually eliminated in the United States. That can’t be said for other places in the world, where so many are still dying from a disease that is now considered manageable, if not yet curable. We can stop mothers and their children from dying. I know because I’ve seen it with my own eyes.

It’s been 14 years since my children’s health was restored. I will get to see my children grow up. It’s a gift, and what greater gift is there? You should know that the Elizabeth Glaser Pediatric AIDS Foundation is making big strides around the world to help families stay healthy. And it’s because of people like you, who care, that life-saving medicines are being made available to those who need it most. I want to thank you for taking the time to read my story and hear my heartfelt message of gratitude. This is important, and together I know we can make a difference.




Suzan Meredith is an author and family ambassador for the Elizabeth Glaser Pediatric AIDS Foundation. She writes from Kentucky where she lives with her husband and three kids. Her upcoming novel, The Silence of Mercy Bleu, was a finalist in The William Faulkner-Wisdom "Novel-In-Progress" Competition. Read more about how Elizabeth Glaser's story inspired Suzan here and learn more about her and her family, at www.suzanmeredith.com.

Comments


Solange Dourado at 9/10/2010 8:08:12 PM
Dear Suzan , I really appreciated your testimony. I am a doctor and I take care of kids living with HIV in the Amazon area - Brazil. I run a home for orphan kids in my city. I can imagine how you felt and how glad you must be . Congratulations for raising one more child that needed a family! I know how important that is. All the best!
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Emma Ofumbi at 9/11/2010 2:28:36 AM
Dear Suzan, what an amazing,inspiring and confidence building testimony. I have printed it out and will use it for my work in our community. I head a village council in Papoli village, Uganda and with the assistance of Village Partners International based in Tampa Fl, have set up a safe house for children living with HIV and AIDS. We support the kids with nutrition and medication against opportunistic diseases. Some of the kids have been on ARV and some mothers on PMTC supported by CDC that has withdrawn the program from our district, Tororo.
I have a few of your testimony examples in my community and different parts of Uganda. I wish this important medication was universally available.
Thank you for sharing this experience, for support to others and may God give you many more years to testify to all. Amen and AMEN.
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Stephanie at 9/11/2010 8:00:54 PM
Thank you for sharing your story Suzan. You have a beautiful family!
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Nono at 9/13/2010 2:13:19 AM
Dear suzan
i am so touched by your testimony i just wish it would get out there to many mothers and children that are suffering from HIV/AIDS. I am a research nurse in South Africa working with HIV infected and affected children. we also looking for sponsors for our children's Christmas party. every year we do a little something special for them and their mothers. to them every little thing means a lot as some of them dont even have the opportunity of going out and enjoying themselves.
We are now faced with a big challenge of disclosure to these kids. Imagine telling a 7 year old that she/he was born with the virus.

All the best Susan we need people like you
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Coxcilly at 9/13/2010 8:57:32 AM
Hie Suzan,
You have a touching story i wish we had this medications in our rural African areas to save these young innocent children born with the virus.
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margaret at 9/13/2010 9:40:39 AM
Thank you so much Susan for your testimony I have had family members and friends that have had to care for who had AIDS. I know the feeling to see a love one suffer fromthis terrible disease. I pray for you family strength and health and that you continue to speak out on this disease. thank you so much for you story it really touched my heart and soul and I will continue to help in what ever ways I can also.
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Esperance at 9/13/2010 11:17:11 AM
Dear Suzan
This is a touching story but I'm comforted by your smile and life that goes on.

Courage!

Espe
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From Nathan NDAYIZIGA at 9/14/2010 11:15:53 AM
Dear Suzan,
I do really appreciate your testimony that inspires people for an effective advocacy. Thanks for the great courage in mobilizing some economic income to support more children to live a better life and reduce their sufferings.
Thank you for the wonderful message to the community and leaders so that all the decision makers may know that together we can make a difference.

I do understand what are your feelings when you see that life continues no matter the stories behind this virus that generates death to some. May God continues to bless you and your family as life goes on.

Nathan
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lilllian kwamboka at 9/16/2010 5:16:50 AM
Hi Suzan
Thanks ,this is a touching story as it inspires people for effective advocancy .Be blessed.
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upendra mishra at 9/16/2010 9:24:30 AM
thanks for mail


i am very happy & god, my wife & 3 child negative but child help redding please.

upendra
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Lynn at 9/17/2010 1:16:54 PM
Thank you for sharing your story. I'm so glad your picture & your family is included. It gives hope to so many. As senseless as it is, many people still believe that caucasian, looking well-to-do families can't possibly be affected by AIDS and that it's only careless or reckless behaviors by reckless people that get it. You made a fantastic point about how you contracted it. You were young and in love, that's all. You were proactive in taking care of your biological children and adopting another son to pay it forward with all the love you have. Your husband is just awesome. He is sort of the outsider in this group. I'm so happy that your family is healthy and willing to speak out to help many people prevent contracting the disease (your story will help many, many teenage girls in love who think it can't happen to them) and for mothers to know there is hope and how to protect their unborn child from getting it.
My prayers and love are with you and your family now & always for all you're doing. Instead of being selfish and keeping your heads down to live for yourselves, you've got hearts of gold to be open and shout the truth to help others. You really are God sent!
I used to be an AIDS counselor & have seen firsthand what it does, but you are the new faces that present hope and a bright future! God Bless You.
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steve at 9/18/2010 5:43:55 AM
Thanks Suzan for your touching testimony.I manage HiV infected and affected children and understand well what it means to see dying children, but with everbody`s advocacy this nightmare will be over soon. We need more people like Suzan
Steve
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Junaid den at 10/15/2010 12:36:13 AM
Dear Suzan
I do really appreciate your testimony that inspires people for an effective advocacy. Thanks for the great courage in mobilizing some economic income to support more children to live a better life and reduce their sufferings.

Thank you for the wonderful message to the community and leaders so that all the decision makers may know that together we can make a difference.

I am also runing an institute to work and support for HIV victims,
preventing from Human Rights violation and other kinds of violations and social development.
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